Skip to main content

Why It Matters

The biggest obstacles to finding treatments for brain disorders may be the costs and time involved in clinical trials – and the Brain Health Registry directly addresses those challenges

Better Care and Discovery for Treatments for Your Family Begin with Your Action Today.

Faster clinical trials

We are building a large pool of potential participants in clinical trials. The brain tests and questionnaires can help identify those that might benefit from potential diagnostic tools or therapies. This pre-screened applicant pool can take years off trials!

Better clinical trials

If clinical trials enroll participants from our Registry, the scientific team may be able to see changes in brain functioning that occurred before the trial began. This longitudinal data makes for better research – and that gets us closer to discovering treatments.

More innovation

When trials are faster, better and less expensive, investigators can test more theories and try new therapeutic approaches. The prospects for breakthrough innovation increase – and that’s exactly what we need.

Someone you know has been touched in some way by brain disorders. The impacts are everywhere:

0
Americans have Parkinson's
0
American adults have PTSD in any given year
0
Americans have Alzheimer's
0
Traumatic Brain Injuries occur annually in the U.S.

1 MILLION

U.S. costs for Alzheimer's care

1 IN 3

American seniors die with Alzheimer's or another form of dementia

17.5 BILLION

Hours of work done annually by unpaid caregivers, most of them family members

TENS OF MILLIONS

Suffer from depression, sleep disorder, ADHD and other brain ailments

Personal Motivations

I’ve seen the impact of Alzheimer’s – I’ve had friends who have lost loved ones, and the toll is immense. So I see it as a privilege to help with medical research. I feel like this is a way I can pay it forward to future generations, including my own children.

Jackie BobergSaratoga, CA

There are many reasons why I'm participating in the Brain Health Registry, but here's the number one reason: my father. Ten years ago, he was diagnosed with Parkinson's disease. I want to help find a cure and participating in this project gives me the greatest opportunity to do just that.

Angela DanielsWindsor, CA

It’s been two years since my mom died while suffering from Alzheimer’s. I think about her every day. Participating in the Brain Health Registry is a way for me to honor her. It’s something I can do that’s real and tangible.

John FitzpatrickSan Bruno, CA

My godfather has Parkinson's. He's a priest, and the disease is taking away his ability to preach. I signed up with him in mind. If, in the long run, this can help save and empower voices like his, it will be a great thing. And I'd like to be a part of it.

Theresa WalshSanta Clara, CA

My college roommate was recently diagnosed with Parkinson's. She's working hard - exercising, meditating, doing yoga - to keep her symptoms at bay, and she's holding on to the positive attitude she's always had. I'm hoping this research can lead to a cure and help her stay positive and vital. That’s why I’m here.

Anne de la RosaSan Mateo, CA

PTSD doesn't have to break apart families or end lives, but it often does. Veterans like my dad who go into a war zone and come out with a devastating disorder deserve new and better treatments to help them live normal, happy and fulfilling lives. I am honored to take part in the Brain Health Registry so I might help those who have put themselves at risk in service to the nation.

Roxanna SmithOakland, CA

It’s easy to join!

(You must be 18 years or older)

1. Sign Up

You can join as an individual or with a partner.

2. Tell Us About Yourself

Answer some questions about your medical history, current health, and lifestyle.

3. Do Some Online Brain Tests

These tests exercise your memory, and are like games.